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David (Patient) Meets Goliath (Health Provider)

To gain a rapid assessment of the top concerns of patients with Alpha-gal Syndrome (AGS), Tick-borne Conditions United (TBCU) conducted a survey in early August 2019. This survey was sent via e-mail to newsletter subscribers and posted on social media accounts. Due to the need for a quick turnaround, the survey was posted for 48 hours. One hundred thirty-one (131) people responded.

The top three concerns of AGS patients center on lack of knowledge of healthcare providers, ingredient labeling, and the need for research funding. Here is a quick summary of findings.

89% Lack of healthcare provider knowledge

79% Ingredient labeling on food and pharmaceuticals

36% Funding for additional research on Alpha-gal

35% Other

21% Lack of non-mammal ingredient vaccinations

21% Broader tick testing to capture additional conditions

15% Need for treatment, prevention, and signage in public places

8% Coping in the workplace and school environment

5% Mammal-free tick repellents and yard treatments

5% Lack of understanding and support from family and friends

To view additional study details, please click here.

Share Your Alpha-gal Experiences. Take the Survey!

Please click here to begin survey.

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Cofounder, TBC United, CEO and Founder, TickWarriors

Dr. Jennifer Platt has decades of experience in public health and environmental program development. She has led the creation of nationally recognized, award-winning education programs and has spoken extensively to audiences of all sizes.

While working on her doctorate in public health from the University of North Carolina in 2011, Dr. Platt contracted Ehrlichiosis. She was later confirmed to also have Lyme Disease and Babesia.

Dr. Platt’s personal experience with tick-borne illness led her to create TickWarriors in 2016, which provides eco-friendly tick protection for people, pets, and property. The pervasive need for education and awareness led Dr. Platt to co-found Tick-borne Conditions United in 2018 with Beth Carrison.

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