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TBCU Trains 250 Advocates and Educates in #DC – “RECOGNIZE #AGS ACT ” (H.R. 7373)

Exciting Update! Pamela Traina, the Advocacy Coordinator at TBC United, recently spoke at FARE’s 2024 Courage at Congress fly-in. During the event, she educated advocates and participants about Alpha-gal Syndrome (AGS) and emphasized the importance of promptly reporting new cases. We extend our gratitude to the FARE team, advocates, and legislators who supported the newly proposed H.R. 7373 Recognize AGS Act. Additionally, we value the chance to contribute to other vital legislative initiatives that benefit the broader food allergy community.

Noteworthy Acts and Bills:

  • The Adina Act, H.R.4263
  • Dillon’s Law, H.R.3910
  • Recognize AGS Act, H.R.7373
  • Epipen Act, H.R. 6965
  • Protecting Children with Food Allergies Act S. 121

For further insights into the Food Allergy Research and Education (FARE) organization, visit foodallergy.org.

For bill announcement, and updates please visit, Congress.gov, or the newly formed Alpha-gal Action Alliance Action Fund.

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Warm regards,

Beth Carrison
CoFounder and Director of Advocacy

Jennifer Platt, DrPH
CoFounder and Director of Programs

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Beth Carrison has 30+ years of experience in business development and healthcare patient advocacy. Since 1996, she has managed over 30 different food allergies within her family unit; in addtion, two family members were diagnosed multiple times with Lyme Disease. Being diagnosed herself with two tick-borne conditions – Lyme Disease and Alpha-gal Syndrome (also known as the “Red Meat Allergy” or “Mammalian Meat Allergy”) unfortunately gave Ms. Carrison a firsthand perspective on both tick-borne conditions and anaphylaxis. Since her diagnosis, she has passionately given her time to others in the Alpha-gal community thorough individual connections and numerous speaking engagements across the country.

In 2018, Ms. Carrison co-founded Tick-Borne Conditions United (TBC United), with Dr. Jennifer Platt. In 2019 Ms. Carrison was appointed as a patient advocate to the federal 2020 Alpha-gal Syndrome Subcommittee, which serves the federal Tick-Borne Disease Working Group (TBDWG) under the Department of Health and Human Services (HHS). Ms. Carrison encourages everyone to join at least one community organization and volunteer their time and talents whenever possible.

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