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Cover of Standardized Case Definition for Alpha-Gal Syndrome with white sans-serif type in upper left on dark orange background with news icon

Thanks to the work of the Council of State and Territorial Epidemiologists (CSTE), there is now a standardized case definition for Alpha-gal Syndrome (AGS). The use of a common definition allows comparison across states that track AGS. (This is a surveillance definition and not to be confused with a medical diagnosis definition.)

Note that at this time reporting AGS to the Centers for Disease Control and Prevention (CDC) is voluntary and decided by each state. The CDC calls this “reportable”. At a point in the future, if every state is required to report AGS to the CDC it would be considered nationally notifiable.

It is important to highlight that the CSTE recommends both confirmed and probable cases be included in the “case” count. For complete details of the standardized case definition please visit the CDC website here.

We invite all stakeholders of AGS to join TBC United as we campaign to raise awareness, and rally support to adopt AGS as a reportable disease in your state. If interested in advocating in your state, please sign up here. Stay tuned for more information coming soon.

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Beth and Jennifer

Beth Carrison, INHC
CoFounder and Director of Advocacy

Jennifer Platt, DrPH
CoFounder and Director of Programs

Cofounder, TBC United, CEO and Founder, TickWarriors

Dr. Jennifer Platt has decades of experience in public health and environmental program development. She has led the creation of nationally recognized, award-winning education programs and has spoken extensively to audiences of all sizes.

While working on her doctorate in public health from the University of North Carolina in 2011, Dr. Platt contracted Ehrlichiosis. She was later confirmed to also have Lyme Disease and Babesia.

Dr. Platt’s personal experience with tick-borne illness led her to create TickWarriors in 2016, which provides eco-friendly tick protection for people, pets, and property. The pervasive need for education and awareness led Dr. Platt to co-found Tick-borne Conditions United in 2018 with Beth Carrison.

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